Baby #4 is a year

I haven't posted much and I am sorry. Baby number for came a year ago. I only had a few of times where I actually had hives after he was born. I itched *A LOT* but there was no breakouts, occasionally just a couple localized hives. We've nursed this time around too. My milk supplies have been good. This baby has been a really good nurser too. It is a baby boy.
Theories on why I have had hives less with each baby:
1- I have been limiting environmental factors that I know cause me allergy problems. Taking these proactive steps I think contributes to my diminished reactions.
2- I also believe that having my children closer together has helped my body and immune system "remember" and react less each time. After my twins were born I had some hives, but it was more on the level of the reactions I was having near the end of nursing my first child. By the time I stopped nursing I was having a few breakouts but never full blown. Then with this baby it has been hardly anything to be concerned about. I haven't even been taking the medications.
3- Along the lines of having the children close together so my body is remembering, my body my be building tolerance to the offending enzymes. This principal is build upon the theory that allows getting allergy shots and treatments work. By exposing your body to the offending enzymes, you are teaching your body what is okay for it to allow and you build up a tolerance. Until the point that you can eat that food, or hang round that plant or animal.

As I have wrote so many times, There is so much we are still learning about immune systems. Not only are we still learning we have also learned that although the major ways our bodies respond is similar we each respond to different things and for different reasons. Since each person is so different narrowing down causes especially when the party is a pregnant or nursing female makes research even more difficult. What we do know is that pregnancy and having a baby changes your body chemistry and can change what your body reacts to. Through sharing my experiences with women, many have shared their stories with me. Some of hives, but some of "all of the sudden" being allergic to new things in their lives (ie their pet, their favorite lotion or shampoo, finding a laundry detergent unusable anymore, finding foods they are now allergic to but use to be able to eat just find)- all shortly after having a baby. Most of these women had doctors that told them it was all in their heads or that they probably would have developed that allergy regardless of  having a baby. There is research to back US up. Immunological changes can and do happen after being pregnant. You are not crazy.

I have a couple final things to say in advice.
1- don't allow others to think your crazy, pregnancy and changing immune systems is a thing.
2- But keep an open mind. I didn't think that environmental factors were playing a part in my hives, But upon finding treatments we learned that my environmental factors were causing my outbreaks to be worse.
3- Don't make your mind up that your hives or allergies are caused by X. Again this is keeping an open mind. Do not go blaming that you used drugs (epidural or others) during delivery as the reason, on the flip side don't blame that you had a natural birth either. Don't blame nursing, or not nursing. Don't blame having gestational diabetes. Don't blame that your baby was a boy or that it was a girl. I have heard all these things *blamed*.  It is true that any of these things could have been a factor but the chances are they are nothing more than a factor in a sea of many factors. As humans we want to find reasons for causes and we want to blame things, but in the end blaming those things aren't helping you or anyone else. If you are really concerned then try to do it differently the next time you have a baby, chances are though if you're going to react to something it will happen either way. If you fixate on one thing causing your allergies- doctors will categorize you as crazy and stop listening to you.
4- Find ways to live life and don't dwell on it. I am a huge believer in that things are always worse when we are dwelling on it. I believe that this last baby it has also be less is I have 4 kids who need a ton of my time. I don't have time to dwell and worry about why I have hives. I notice them and move on because I need to live life and take care of my children.

Good luck to all of you suffering. I look forward to the day of science fiction science where a drop of blood can tell a doctor everything we could ever want to know about our bodies. Until then God bless each of you- I hope you find relief. 

Done with Round Two of Hives and Nursing

I am about 4 months hive free. My girls are 16 months today. I nursed them for 1 year. Yeah us!!! I didn't think it was going to be possible to nurse twins for a year. 
As for my hives, they are gone. Near the end there they weren't bad. In fact I could miss taking a Zyrtec and wouldn't have any bumps appear, but my skin would itch like crazy until I took the next dose. As sure as it happened the first time with nursing my son. As soon as my milk dried up, my hive went away completely.
I don't know if it is that my body was adjusting to everything this time around, but my hives were never as severe as they were the first round. I would get hives while nursing my twins, but never full body break-outs like I had while nursing my son.
We are expecting right now. And I will let you know when round three happens. But right now I'm just enjoying a Zyrtec and hive free life. Not to mention wearing a normal bra. I know TMI but so true.

Thank-you to all of you who have commented and shared your stories. I pray each of you can find peace from your hives.

Things to remember about hives:
1- the reason the medical community knows SO LITTLE about hives is hives are caused so MANY different things. Many of which we don't hardly understand at all. 
2- Hives are actually really really new to research and most doctors weren't trained in medical school to understand hives only to treat hives. Be proactive and patient with doctors. 
3- Since there are no ways to know what are causing your hives besides for you to proactively take EVERY LITTLE thing out of your live and reintroduce it, doctors can only try to treat and relieve your hives. This is never going to make them go away.
4- Hives are an immunological response to something you are encountering. You body could be responding to multiple things at once or just one thing. 
5- Why you're responding with hives over an anaphylactic reaction is a mystery. I find gratitude in knowing that it totally be a life threatening reaction but its not its just hives and I can live with hives. Think about that the next time you have a reaction.
6- Each person is DIFFERENT!!!!!! My hives have a strong correlation to breastfeeding. It may have very little to do with actual milk production. But your hives may be caused by something very different. Even within a breastfeeding there are hundreds of things related that could be the cause of hives while nursing and each of us could have a different one of those things.
7- Don't get discouraged. Take hope. This will be but a small moment in our lives and at least for me every hive is worth the blessing of being able to breastfeed my children.
8- Although we are not alone, we are an extreme minority. There are 5 different types of allergic reactions. Hives (urticaria) is just one of those five. It is also the least common of those five. As I said in number five, your allergic reaction could be anyone one of those 5 reactions but for unknown reasons to Immunologists your immune system has chosen to respond with hives.  Our bodies went through a traumatic life event (giving birth to a baby). Any time your body goes through a traumatic life event your immune system is put into shock and can change. This is documented. Giving birth is a traumatic life event and your body is never going to be the same. Our condition is only ignored by the medical community because it has been so rare that not enough cases have been documented in order to bring it to the attention of the one researcher who might know what to do with the information. It is so rare that my Allergist, a well respected Immunologist, is baffled by my situation. He plans on writing a paper on my case at some point. Talk with your doctors and be patient with them.

6 months into nursing my twins

My twins are now 6 months old. We've been nursing the whole time. For the first three months of their birth I was taking 1/2 a dose of Zyrtec daily. If I missed a dose or two it took about 24 hours and then I would brake out with a few hives. I didn't let it go any further than that and I would take the Zyrtec quickly. About 3 months ago I noticed that if I missed a dose it was almost 48 hours before my skin would get so itchy that I couldn't take it anymore, but no hives. My skin would get splotchy -a precursor to any of my hives forming. I started waiting to see how long I could possibly prolong my next dose of Zyrtec. I am now to about once a week taking the dose. It hasn't been as life horrifying this time around. I don't know why. Maybe my body is more adjusted this time to the nursing or post delivery hormones. Maybe there is something to the notion that its worse with boys than with girls. Maybe there is more of an environmental factor than I thought and its not a factor this time. Or maybe with all the other stress in my life God is just giving me a break this time around. Whatever the reason I am grateful.
My allergist said that I should try to take as little and as seldom of a dose as possible because your body will start building tolerances and it will require larger doses to have the same effect on you.
I am so thank for all of you're comments out there. I hope that all ya'll find as much comfort in knowing that we are not alone in our struggles and that we're aren't crazy as some out there want us to think we are.
good luck to all of you.
As my journey continues I'll update my progress.

Babies are Here

Our twin little girls were born a month ago, Aug 11. We've been nursing. I have been taking a half dose of the Zyrtec. Whenever I don't take the dose I start to get a few hives. I haven't held off taking it to see how bad it gets. I just don't want to find out.
Had my first Allergist appointment this last week. He wants me to use a nasal spray in addition to the Zyrtec. Then to see me again in 6 more months. We'll see how it goes.
All of the stories I have heard from readers of my blog about their problems and their family's problems. My heat goes out to all of you who are suffering from hives.

Half a dose

My doctor and allergist had both suggested that if taking Benadryl isn't enough to control my hives. Maybe try taking half a pill dose of my Zyrtec. I decided that it couldn't hurt to try. I can't miss a pill now, before if I missed a pill by the time I needed to take the next pill, it was obvious. Now if I miss I have hives in a few hours. But maybe its better for me and the babies.

Pregnancy Allergist Visit

Last Wed the 11th I had an appointment with my allergist. He wasn't surprised to find out that my hives have returned while expecting. He did ask a series of questions to determine that they weren't PUPPS hives. He asked what I have been doing for it. I said that after I was out of the first trimester I went back on my Zyrtec. He recommended that I try to take Benadryl or cut back on the Zyrtec. Only because there have been no studies on expectant mothers and Zyrtec. There have been no studies with Benadryl either, but it has been taken by expectant mothers long enough over time that it is generally considered safe. Bottom line is there are no tests done on expectant mothers period! We're all to chicken to try anything. Granted being an expectant mother I understand that fear. We don't want to hurt our babies, and no company out there wants to take that risk.
My Allergist suggested trying to not take anything unless it became so unbearable that I couldn't live with it and then suggested the alternate treatments before resorting to medication. So I tried it, I lasted one day. By the end of the full 24 hours with out my next dose I was in so much pain, I couldn't sleep, I itched all up my legs and arms. I was crying from the pain. My husband held me and suggested that I take the second part of the Allergist's advice, that they are my babies and my body and that in the end its my choice how to treat this problem, that the drug is only a class B and was safe on animals that were tested. I took my Zyrtec and with in 2 hours the pain was gone and I could sleep.
In also speaking to my husband, he reminded me that I was on Clariton-D prescription strength, considered even more unsafe for the entire remainder of my 1st pregnancy after the first trimester. My allergies were so bad and my OB prescribed it. My son is healthy and shows no signs of any problems at the age of 2. So I am back on my Zyrtec. Other women my have the strength to live without certain drugs while pregnant just because no one knows how its acting on the fetus. I am not that strong. I am already at high risk for stress induced labor and I have a toddler to take care of, my husband deployed on Friday morning and its us. The last thing I need right now in my life is to be in constant pain from hives therefore being unable to take care of myself or my toddler. I need the Zyrtec, its the only drug that we have found that has an effect controlling my hives and is somewhat safe to take. Too bad taking this on my own choice won't count toward results of a study to determine safeness of drugs for expectant mothers in the future. But then maybe if enough of us have voices and document our experiences- it will.

The Hives are Back

So on Tues I had a small breakout of hives, on my knees and elbows. Now I don't know how random or unrelated to my postpartum hives. The truth is I'm 11 weeks pregnant, so there is a possibility its related.
The hives went away on their own, I didn't take anything since I'm not quite out of the first trimester. It 
really scared me when they first showed up. Can I do this? Am I going to suffer my whole pregnancy and nursing  time with hives? Not good stuff. Well they stayed for about 2 hours and then went away on their own, never got worse than just a few on each knee. 
Since then, (at this point Tues, Wed, Thurs) I've had hives, just localized to those joints. Each time they didn't last longer than a couple of hours.
I spoke to my OB. She is a new OB from my last pregnancy. I've gone throw 2 others in the mean time, that's a whole different story. This OB is wonderful, she listens and answers my questions and doesn't act like I'm an idiot. I told her about my postpartum hives and my hives now. She asked if I had PUPS during my first pregnancy- no is the answer. After listing to me and asking a few questions she express that she doesn't think these hives are PUPS or are caused by the same thing as my postpartum hives. She thinks its stress from watching children and being so sick all the time. She said we'll see how it progresses and just keep notes on it. Also she mentioned that if it gets bad I can start taking Benadryl right now (suggested I might want to take it before going to bed at night to help my sleep and since the breakouts have been in the morning). And then after next week she said I can go back on Clariton or the Zyrtec. 
I'll keep ya'll posted.

Happy Thanksgiving

Happy Thanksgiving and I'm hive free

Happy Thanksgiving to all my blog stockers and followers. My son is now 18 months old (almost 19months). I haven't been nursing for almost 9 months now and I don't have hives, my chronic hives are gone.  I've stopped taking my medication and I am doing great. I've lost 30 lbs and we're considering trying to have baby 2, but we'll see when that happens. I hope that those of you out there who are suffering are talking to your doctors and talking to other women. I was not aware of this problem until it happened to me. I have been surprise at how many women are out there that suffer from this. There could be many different causes of this and each women's body is different. But overall it is more common than the medical community is aware of. Talk about it! Let your doctors know the problem is still going, when it stopped. Keep records -when, how often, changes you made to diet before and after, stress levels. All these things will help when we finally get someone's attention and they start researching it. Good Luck to all of you out there.

2 months After Nursing

It has been over 2 months since I stopped nursing our son. NO HIVES! and no meds. It has been such a relief. 


2 weeks ago I had an appointment with my allergist. He was much more open to the idea that they could be cause by my hives. He said the only way I would be able to test prior to starting to nurse again would be to find a research center/university that is doing research on this subject. Anyone know of one? Otherwise he says we'll have to wait till I have another child and start nursing again. He said that we'll wait till then and we'd have a good case if it happens again. 
One of the things we spoke about that was how their are lots of things related to nursing that could cause the hives. It could be the hormone that cause lactation as I have thought, but he said that there are lots of hormones that are produced to keep you body in balance during that time and I could be allergic to anyone of those hormones. Lastly we discussed that he'd be interested to see if I start having hives while I'm pregnant or if they don't show up until after the baby is born. We'll see. He says that he'd write it up for a medical journal, if it occurs again in the same way.
That's where we're at. Now its just time to wait until we start trying to get pregnant again. Although we want a large family, its going to be at least a few months before we start trying again. 
Thanks for reading. I'd love to hear from those of you out there who suffer also.

All Done Nursing

Well baby is a year and we've totally weened. He handled it really well. So the big question is have my hives gone away?... In short, no. Long, sort of. I've stopped taking my meds. Its been a few weeks. Every few days I have a very small outbreak on my elbows. It only lasts for about an hour. I have another appointment with my allergist next month. Oh, and also my milk still hasn't dried up yet, and I wonder if that has anything to do with it.

Update on Nursing

Still have small break outs if I don't take my meds.
We've started weening. We are down to 3 feedings a day. I'm really looking forward to finding out if my hives completely go away once I completely stop nursing.
We'll see.

Their Back

I woke up and had a breakout of hives. I took my Zyrtec and I am waiting pactiently for them to go away again. The good news is it was a mild breakout. My breakouts have been really bad and full blown in the past. So I think only a mild breakout after not taking my Zyrtec for two days -is progress.

Breakthough

I forgot to take my Zyrtec yesterday. I felt a little itchy last night but no hives. That isn't that abnormal its always the next morning when I need to take my next dose that I have a break-out. But funny thing, I got up, got ready for church, and then forgot AGAIN to take my Zyrtec. I remembered while at church, then I realized, I hadn't had a breakout yet. Could this be the end of my hives? I've gone all day, a little itchy, but no hives. I haven't stopped nursing, but my milk levels have been a little lower (due we think to my new years resolution to have more portion control and therefore my calorie intake has gone down a bit). I am really hopeful. Some women I have spoken to said that their hives went away around 6 months of having them. My hives started when baby was about a month and now he is 8 months, so 7 months. I'm not going to start holding my breath, but I think this is a breakthrough of hope.

Article Related to Postpartum Allergic Reactions

Recurrent Postpartum Anaphylaxis With Breast-Feeding

Shank, Jessica J. MD; Olney, Stacey C. MD; Lin, Fang L. MD; McNamara, Michael F. DO

Author Information

From the Departments of Obstetrics & Gynecology and Allergy & Immunology, Naval Medical Center San Diego, San Diego, California.

Corresponding author: Jessica J. Shank, MD, Naval Medical Center San Diego, Department of Obstetrics & Gynecology, 34800 Bob Wilson Drive, San Diego, CA 92134; e-mail: Jessica.shank@med.navy.mil.

Financial Disclosure The authors did not report any potential conflicts of interest.

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Abstract
BACKGROUND: Anaphylaxis associated with breast-feeding is a rare but potentially life-threatening event.
CASE: This woman reported anaphylaxis with three previous pregnancies while breast-feeding. With her fourth pregnancy she was treated with corticosteroids and antihistamines after delivery. Despite treatment, she developed urticaria, facial edema, and throat tightening, less severe than prior episodes. Her symptoms resolved with epinephrine and antihistamine but recurred with subsequent breast-feeding. On postpartum day 4 she had no symptoms while breast-feeding.
CONCLUSION: Three cases of postpartum breast-feeding anaphylaxis have been reported. Although the pathophysiology is unclear, it may involve the decrease in progesterone and rise of prolactin causing mast cell degranulation. Avoidance of nonsteroidal antiinflammatories and prophylaxis with corticosteroids and antihistamines may offer the best protection.
Lactation anaphylaxis is an extremely rare condition, with only three previously reported cases. Nevertheless, it is a serous and potentially life-threatening condition, where early recognition and treatment are important.
We report a patient who had anaphylactic reactions on postpartum day 3 while breast-feeding after delivery of each of her four children. She was able to breast-feed on the days both before and after the events without such reactions.
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CASE
A 35-year-old gravida 4 para 3 had a history of anaphylaxis on postpartum day 3 with all three previous pregnancies. Three days after delivery of her first neonate, she developed hives, swollen eyelids, choking, coughing, and wheezing, which lasted overnight. The second pregnancy was significant for hives, shortness of breath, and cyanosis on postpartum day 3, which required epinephrine injection and intensive care unit admission. Codeine was used before this reaction. She had a similar reaction again 3 days after delivery of her third neonate, which required repeated epinephrine injections over 24 hours. All three episodes were associated with breast-feeding. Other medical history was notable for mild asthma and gestational diabetes. Because of her previous postpartum anaphylaxis history, she was referred to the Allergy Division for an evaluation. Workup at that time included negative skin tests to common aeroallergens and latex. Her lung function was normal on spirometry. A recommendation was made that she receive prednisone 30 mg twice daily and cetirizine 10 mg once daily beginning immediately after delivery in an attempt to prevent postpartum anaphylaxis. This recommendation was directly passed on to her obstetrician before delivery.
The prenatal course of her current pregnancy was significant for gestational diabetes controlled with glyburide and a history of genital herpes on acyclovir suppression beginning at 35 weeks. She presented in labor at term and was started on penicillin for group B streptococci prophylaxis. She received an epidural anesthesia and had an uncomplicated spontaneous vaginal delivery of a healthy male neonate. As per the above recommendation, she began prednisone and cetirizine prophylaxis. Postpartum days 1 and 2 were unremarkable, and breast-feeding occurred without difficulty. Ibuprofen and acetaminophen were provided for pain control. Three days after delivery, while breast-feeding, she developed raised, erythematous, pruritic patches on her arms, chest, and back, with periorbital and oral swelling. The rash worsened after each episode of breast-feeding. She had received a total of six doses of 800 mg ibuprofen before the first onset of hives, and was subsequently discontinued. Her symptoms began to diminish after intravenous diphenhydramine, but with each attempt to breast-feed, the facial edema and rash returned. She was subsequently also given an epinephrine injection and ranitidine for control of her symptoms, which subsided overnight. Her symptoms did not return despite continuing to breast-feed throughout the rest of her hospital stay. Upon discharge, the patient was given strict instructions that if her symptoms returned to use the epinephrine auto-injector and to go immediately to the emergency department. The patient was discharged home and continued breast-feeding with no further symptoms.
She was reevaluated by the Allergy Division because she suffered these reactions despite the recommended pretreatment. Skin tests to the patient’s breast milk and oxytocin were negative. Prolactin was not available for skin testing. In addition to prophylactic treatment with steroids and antihistamines, she was advised to avoid all nonsteroidal antiinflammarory medicines if she is to have another pregnancy.
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COMMENT
The first report of a case of anaphylaxis associated with breast-feeding was in Lancet in 1991 1 and describes a 29-year-old woman with generalized urticaria and upper airway angioedema with each breast-feeding over 3 days after the birth of her first child. She was taking aspirin at the time, and the episodes resolved even with continuation of breast-feeding once the aspirin was discontinued. One month later she had another anaphylactic episode within a few minutes of breast-feeding while taking paracetamol (acetaminophen). After the birth of her second child 5 years later, she suffered similar episodes after breast-feeding despite not taking any aspirin or acetaminophen. Suppression of lactation was ultimately required for both postpartum periods. The authors suggested that the anaphylactic episodes were triggered by breast-feeding, milk let-down, and aspirin use and that progesterone may be a factor.
In the Journal of Human Lactation in 1998,2 a second case describes a 30-year-old woman with hives, throat edema, and wheezing after breast-feeding on postpartum day 3. She had breast-fed uneventfully for the first 48 hours after birth and was able to continue to breast-feed without subsequent reactions beginning on postpartum day 4. She was taking ibuprofen for pain control. The authors suggest that breast-feeding triggered the anaphylactic reactions in this woman and that nonsteroidal antiinflammarory medicines were probably a contributing factor.
The most recent report (European Annals of Allergy and Clinical Immunology 2007)3 describes a 31-year-old woman with a generalized rash, airway angioedema, wheezing, hypotension, and loss of consciousness 72 hours after the delivery of her first child. These symptoms occurred again with her second child in a similar manner. The episodes were temporally associated with breast-feeding and subsided when breast-feeding was discontinued or lactation suppressed. The authors suggest that the symptoms could be due to the actions of oxytocin and corticotropin-releasing hormone on mast cells, facilitated by the absence of the stabilizing role of progesterone, resulting in degranulation release of histamine and other mediators.
Lactation anaphylaxis remains a rare occurrence, and the actual pathogenesis of the reaction remains unclear. Prior case reports suggest a relationship to the hormone shifts related to the end of gestation and the beginning of lactation. The rapid decrease in progesterone after the delivery of the placenta in the presence of a high level of prolactin allows for the process of lactogenesis.4 This process typically occurs around postpartum days 2 to 3, which relates well to the appearance of symptoms in this patient as well as two of the three patients in the previous case reports. The use of nonsteroidal antiinflammatory medications is also cited as a contributing factor. These agents are known to exacerbate urticaria and anaphylaxis.5
Recent studies have shown that during pregnancy, increased numbers of mast cells are found in the mammary gland and uterus.6 It has also been shown that progesterone has a stabilizing effect on the mast cell membrane, whereas estrogen increases mast cell degranulation and histamine release. The abrupt withdrawal of progesterone after delivery may facilitate the release of histamine. Steroid levels also peak with labor and delivery and then quickly decline. The removal of corticosteroid suppression of mast cells may also predispose these women to anaphylactic reactions. There may be many other mechanisms related to breast-feeding in these particular patients that have not yet been discovered because of the rarity of such events. For those patients with a previous history of anaphylaxis while breast-feeding, a prophylactic regimen with corticosteroids and antihistamines begun immediately after delivery and avoidance of all nonsteroidal antiinflammatory medications may offer the best protection.
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REFERENCES
1. Mullins RJ, Russell A, McGrath GJ, Smith R, Sutherland DC. Breastfeeding anaphylaxis. Lancet 1991;338:1279–80.Bibliographic Links [Context Link]
2. MacDonell JW, Ito S. Breastfeeding anaphylaxis case study. J Hum Lact 1998;14:243–4. Bibliographic Links [Context Link]
3. Villalta D, Martelli P. A case of breastfeeding anaphylaxis. Eur Ann Allergy Clin Immunol 2007;39:26–7. [Context Link]
4. Neville MC, McFadden TB, Forsyth I. Hormonal regulation of mammary differentiation and milk secretion. J Mammary Gland Biol Neoplasia 2002;1:49–66. [Context Link]
5. Roujeau J, Stern RS, Wintroub BU. Cutaneous drug reactions. In: Fauci AS, Kasper DL, Longo DL, Braunwald E, Hauser SL, Fishman RA, et al, editors. Harrison’s principles of internal medicine. Part 2. Cardinal manifestations and presentation of diseases. Section 9. Alterations in the skin. 17th ed. New York (NY): McGraw-Hill Medical; 2008. Chapter 56. [Context Link]
6. Rudolph MI, Rojas IG, Penissi AB. Uterine mast cells: a new hypothesis to understand how we are born. Biocell 2004;28:1–11. Bibliographic Links [Context Link]
7. Lipscomb K, Novy MJ. The normal puerperium. In: DeCherney AH, Nathan L, Goodwin TM, Laufer N, editors. Current diagnosis & treatment obstetrics & gynecology. 10th ed. New York (NY): McGraw-Hill; 2007.

Purpose of this blog

Hello Everyone,

I have such a response to my post on my other blog. I have heard from so many women who have had similar experiences-to a greater or lesser extent. With every women I come in contact with I am amazed at how many of us are out there.

Starting this blog was suggested to me and after thinking about it, I think it is needed. A single place where we can all share our stories. Share our problems. Let each other know what is working for us, and then one day help the medical community find the answer to why and hopefully help.

As I receive stories, updates, and info that I find or are given I will post them here. If you have anything to share you can email me at judeebeeforme@yahoo.com